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I never much liked my breasts anyway

I’m having that ultrasound tomorrow morning, and hopefully it will show that the MRI was hallucinating when it saw an area of “enhancement.” Hopefully everything will go back to the best case scenario that was presented a few weeks ago: one small tumor, a plan for its surgical excision, five weeks of radiation, and then 30 or 40 years of living happily ever after.

But if the ultrasound confirms the “enhancement” (I hate using words I don’t understand), then there will be a mastectomy, and a whole different plan and prognosis.

I may have given the impression the other day that I was horrified by the prospect of a mastectomy. I’m not. I would hack off both breasts myself with a kitchen knife and deliver them to the Women’s Breast Health Centre in a pail if I thought it would improve my odds of survival.

No, my horror was not at the prospect of mastectomy. It was at the prospect of the cancer being more advanced and more far-flung than we had previously believed. It was the fear that this “enhancement” is an ominous sign of advanced spread. (Which it might not be – as I said before, I don’t even know what it means. It’s just another big scary unknown in a universe of scary unknowns.)

Since the mastectomy got put on the table, though, I’ve spent some time thinking about my feelings about my breasts. I never thought they were one of my better naked features. In fact, almost from the moment I got breasts I started finding fault with them.

But that doesn’t mean I feel good about having one of them lopped off. No. It’s still part of me, and I feel kind of sad to think it might soon be in a pile of medical waste somewhere.

The other night I was lying in bed thinking about all this stuff, and I realized I was polyanthromorphizing my breast. I was feeling sorry for it, poor little thing, getting kicked off the island, so to speak. It’s not like it ever did anything wrong.

Cancer can drive you a little bit crazy, you know, especially in the middle of the night.

Tick tock

It’s the waiting. The layers and layers of waiting. Every single thing in this cancer experience involves waiting. Sitting in big waiting rooms that lead to smaller waiting rooms that lead to machinery and tests that lead to seven to ten working days until the doctor gets the results, that lead to appointments that later get rescheduled because more tests have to be conducted and more results have to be waited for.

Last week the surgeon told me I could call the Women’s Breast Health Centre today and ask for the results from the bone scan, the chest x-ray and the abdominal scan. This is hugely significant stuff. It could mean the difference between Stage I and Stage IV cancer. I didn’t want to be alone when I got these test results, so GC said he would come over around 10:00 and be here with me when I made the call.

At 10:00 I took a deep breath and made the call. I got the answering machine for the nurses’ line, which is normal. I left a detailed message and asked for someone to call me back.

Three hours later I phoned again and left another message. That was two hours and forty-three minutes ago.

Basically GC and I have spent all day waiting for the phone to ring. He missed a day’s work for this. And, as the day drags on, I find it harder and harder to remain positive. If the news were good, the nurses would probably be able to make the call themselves. But if the news is bad, maybe they have to wait for the doctor to find time to make the call. And the doctor is probably busy saving other people’s lives.

The clock keeps ticking and I keep waiting for tests, for test results, for appointments, for phone calls, for a treatment plan, for surgery, for information, for news.

Meanwhile, the cancer waits for no-one. I read the other day that breast cancer tumors, on average, double in size every hundred days. Mine was discovered 70 days ago. (It took 44 days to go from lump to diagnosis.)

Thank you

Cancer sucks, there’s no question about it. But I have been deeply moved by the genuine outpouring of affection and concern from so many people – family, friends, strangers, and others – since I got diagnosed a few weeks ago. There hasn’t been a day that’s gone by that I haven’t felt deeply grateful to somebody for something.

Karen's care package

Karen's care package

Remember Karen, the woman who approached me to ask if I was Duncan’s owner? Well, she emailed me on Friday and said she’d like to drop off a care package on Saturday. There was food and wine and flowers and movies and catnip and a toy for Duncan! It was amazing. GC and I spent all evening saying “This is amazing!” as we ate our way through most of the food and drank our way through most of the wine, and watched Burn After Reading. Even Duncan, who doesn’t normally show much interest in toys, fell in love with the mouse who scuttles across the floor when you pull his tail. (I’ll try to get some video of Duncan skidding across the floor in hot pursuit.)

I love that there are people like Karen in the world. It was such a kind thing to do, especially considering we’ve only met once, and briefly at that.

A few years ago, Megan was writing an article about blogging and community. I think she interviewed a number of local bloggers about our thoughts on whether there is, in fact, a blogging community, and whether virtual communities are as ‘real’ as ‘real’ communities. Something like that, anyway. If I had any doubts then, I can say unequivocally now that virtual communities are real. I have taken genuine comfort over the past few weeks from the words and actions of so many people in my virtual community. I love you guys. Thank you for being here for me.

Project CRACKDOWN

Did you hear about Project CRACKDOWN and the resulting police sweep of the Byward Market? The Ottawa Police’s Street Crimes Unit spent four months investigating open drug use in the Market and then conducted a sweep of low-level street dealers on Thursday in preparation for tourist season.

Tourist season.

Think about it. That’s how we define our drug problem. Not as a problem for addicts, not as a problem for the people who care about them, not as a problem for the people who share their neighbourhoods, not as a public health problem, but as a problem for tourists. An aesthetic problem with economic consequences.

104 people were identified as suspects by Project Crackdown, and of these, 48 were arrested on Thursday night. I believe warrants have been issued for the remaining 56. They are all low-level street dealers – in other words, addicts.

Addicts have to make some tough choices, and one of the toughest is how to get the money they need to feed their addictions. Often this comes down to a choice between selling drugs, selling sex, panhandling or stealing. The ones targeted by Project Crackdown are the ones who choose to sell drugs to fellow addicts.

Most of the people arrested were charged with trafficking in crack cocaine. Others were charged with trafficking in marijuana or opiates, and some were charged with breach of bail conditions.

The total haul by police was “22 grams of powder cocaine, 190 grams of crack cocaine and 100 grams of marijuana, with an estimated total street value of about $46,000,” as well as two vehicles and $16,000 cash deemed to be “crime-related property.”

Never believe the street value figure, by the way. I don’t know how they calculate it, but it’s always inflated. Regardless, this seizure is clearly small potatoes. The four-month investigation cost way more than the drugs they got off the streets. (There are people making obscene amounts of money off drugs in this city, but none of them were of interest to Project Crackdown.)

Most of the people charged will be released with various conditions, including that they stay out of the Market area. After all, we’re coming up on tourist season and that means the street people have to be swept out of sight so the tourists don’t get the right impression.

This particular condition – staying out of the Market – provides police with an easy handle to control both the addicts and the Market’s image.

The strategy is one of displacement. The theory is that if you move the street level dealers out of the neighbourhood, the rest of the addicts will go wherever the dealers are.

My guess is that most of the low-level dealers and addicts will not stay out of the Market, at least not for long. It’s their community. It’s where their friends are. It’s where the services they use are, such as shelters, soup kitchens and drug programs. I think they’ll continue to go into the Market, but they’ll try to keep a low profile for awhile. If they don’t, and they are deemed to be an eyesore for the tourists, the police can just scoop them up and jail them for breach of conditions.

When their court dates come up, most of these street-level drug dealers/addicts can expect to spend several months in jail. It will be interesting to see if their jail terms coincide with tourist season.

A call from the doctor

I got a call yesterday from someone wanting to schedule an ultrasound of my breast. I was sure there had to be some kind of misunderstanding, since I already had an ultrasound of my breast last month, but no, there was no misunderstanding. My cancer surgeon, Dr. Arnaout, ordered another ultrasound after seeing the results of the MRI.

I knew this couldn’t be good. I called the Womens Breast Health Centre and left a message on the nurses’ line, asking that someone call me back to explain. Then I called GC and he came over and waited with me for the phone to ring. While we waited, we tried to think of non-fatal explanations for the doctor wanting another ultrasound.

“Maybe,” suggested GC, “the tumor has vanished!”

A couple of hours later Dr. Arnaout herself called.

She told me the tumor is twice as big as they thought. It’s 1.9cm.

But that wasn’t the worst news.

The worst news is that there’s another area of concern on that breast, exactly opposite of where the tumor is. It’s about the same size as the tumor, but it’s not a tumor. I think she described it as a “non-masslike enhancement of suspicious disease.”

Now, anything I can say about that would be speculative because I’m not sure what it is exactly and my efforts to look it up have not yielded anything useful. I do know it’s not a good thing. (I should have grilled the doctor while I had her on the phone, but I didn’t want to take up too much of her valuable time and I figured I could look it up later, and besides, I was in a bit of a state of shock.)

She went on to say that instead of dealing with a 1cm area as we previously thought, it’s a 5cm area. And that means we’re looking at a mastectomy instead of a lumpectomy.

My gut feeling is it also means a greater risk the cancer has spread to other parts of my body, and therefore I’ll have to have chemotherapy as well. But she didn’t say that.

She did say it’s possible the MRI was wrong. Apparently MRIs are greatly influenced by hormonal fluctuations, and I had mine at a particularly hormone-rich point in my cycle. Therefore, the MRI might have seen something that wasn’t there. And that’s why she has ordered the ultrasound – to see if it confirms what the MRI saw.

I asked her about the results of the bone scan and other imaging tests, but she didn’t have those yet.

Meanwhile, the appointment on June 1st has been rescheduled to June 8th.

I got off the phone and looked at GC, who had gathered enough from my end of the conversation to know the news was bad and that we were moving beyond lumpectomy to mastectomy. It was a grim moment, and it demanded a little levity.

“Do you think one-breasted women are hot?” I asked.

“Yeah,” he said, and then he wrapped his arms around me and we both started laughing.

The rest of the day was spent in that weird hyper-emotional space that envelopes you when you’re absorbing horrifying news. I felt the same way the day I found out I had cancer. Terror, in waves. And all kinds of other feelings in the spaces between the waves.

The day I got cancer

There was a day – a single specific day – on which I got cancer. I don’t know what day it was, except it was probably about four or five years ago because that’s how long it takes breast cancer to grow from a single mutated cell into a discoverable lump.

Four or five years ago I was in the best physical shape of my entire adult life. I was running, lifting weights, doing yoga and aerobics, skating, skiing, eating well, and not smoking. I was lean and healthy. I looked good and I felt good.

I love the irony of having gotten cancer during my two-year healthy-lifestyle phase, because I am by nature a self-indulgent and slothful layabout who would rather eat 2,000 Smarties in the interests of mathematics than eat a single vitamin supplement.

I read that anger is common with cancer. It’s not unusual for people to ask “Why me?” But I haven’t felt any anger and I’m not really surprised it’s me. I’m as good a candidate as anybody, I suppose. Except that none of my blood relatives have ever had any type of cancer, so we’ve always felt protected. A little smug, even. Now I feel kind of apologetic to my relatives, especially my sisters and nieces, for being the weak link that let cancer get its foot in our collective door.

I guess I’m a little surprised that it’s breast cancer, even though one in eight women can expect to get breast cancer at some point in their life now. I’m not sure why it surprises me, but it does. And I’m surprised that it’s my right breast. I never consciously thought about this before, but at some level I thought if I ever got cancer, it would be on my left side. Left lung. Left ovary. Left kidney. Or cancer of something that there was only one of, like my cervix or my brain. I know that doesn’t make sense, but there you go.

I wonder if the day I got cancer was an otherwise good day, or if it was a difficult, stressful day. I wonder what I was doing the exact moment that cell mutated.

I wonder why I got cancer. Was it something I did or didn’t do? Was it something I knew I should or shouldn’t do? Like that time I used the flea pesticide on the dog indoors even though the instructions said to use it outdoors only? (I probably wouldn’t even remember this, except that all the ants in the ant farm died, which gave me pause.) Was it microwaving food in a plastic container? Not taking Vitamin D supplements? Eating a Boston Cream donut? Not eating walnuts?

Or was it something totally off the wall that we don’t yet know causes cancer, but maybe someday we will. Like doing push-ups or touching cats while wearing yellow socks.

Or was it just bad luck? Just a totally random sequence of events at the genetic level, which was totally beyond my control?

I guess I’ll never know. But if I could do it all over again, I’d take my Vitamin D supplements. And I wouldn’t use that pesticide indoors.

Subtle hues and square inch gardening

It seems GC is much better at distinguishing subtle hues than I am: he scored 11 and I scored 53 on the Munsell Hue Test yesterday. (Zero is a perfect score.) I’m sure his giftedness in this area is due to the fact that his father is an ophthalmologist, whereas my father is just a professional bridge player. Of course I concluded that the Munsell Hue Test is kind of dumb and a bit tedious, but GC thinks it is brilliant and tons of fun. We’ll let you be the judge.

Last night we finally planted our vegetable garden over at the Carlington Community Gardens. We planted both seedlings and seeds and I’m just a wee bit concerned we might have jammed too much stuff into too small a space. I mean, everything’s nice and roomy now, but maybe in a few months it’ll be overcrowded.

The plot is 10 feet by 12 feet. We planted chives (1), asparagus (2), beans (7), peas (5), zucchini (just 1, like Grace said), cilantro (5), eggplant (1), raspberries (3), onions (about 36), swiss chard (about 15), strawberries (2), lettuce (6), cucumbers (1), tomatoes (2), carrots (um…about 40), peppers (3). We left room for radishes, potatoes and basil.

Whadya think? Will it work? (We’re clearly novices at gardening, and all our neighbours at the community garden seem to have figured this out. They seem amused by us though, and like to watch us and chuckle and offer us gems of wisdom and practical tips.)

Something happened inside the cylinder

I had the MRI last night at the Civic Hospital around 10:00. Did you know they have MRIs scheduled round the clock?

Fortunately, Donna Lee had left a comment giving me some idea of what to expect – ie, lying on my stomach with my breasts dangling through two holes in the table. Otherwise, when the very nice technician showed me the table and said it was fairly intuitive, I might have put my arms through those breast holes.

My arms were stretched out in front of me. There was a thing in one arm so they could remotely administer an injection halfway through the MRI. In my other hand was a rubber bulb, which I was instructed to squeeze if I started to panic or needed the technician’s attention.

Headphones were placed over my ears to muffle the noise a bit. But holy mother of god, that machine is noisy! I had heard there would be banging and clanging, but it was more intentional than I expected. More rhythmic. And constantly changing.

As soon as she slid me into the giant cylindrical magnet, I started chanting over and over in my head: Nam myoho renge kyo. It’s a Buddhist chant. I chanted so I could focus on something other than the noise.

Something odd happened after awhile though – the noises of the machine started chanting along with me. The banging and clanging started to sound like Nam myoho renge kyo. The noises kept changing, but the chant followed the changes. When you’re in a room full of people chanting, there’s a vibration, a hum. In addition to the clanging sounding like chanting, the vibrations of the machine started feeling like that hum.

The MRI was still disturbingly loud and I was relieved when the half hour test was over, but the chanting made it feel like a kinder and less mechanical experience.

Also – good news. The appointment for finding out the results of all these tests has been moved up because the MRI got changed to the Civic Hospital because two different doctors ordered the same MRI for me. Now, instead of having to wait until June 8th to find out if the cancer has spread, I’ll know the morning of June 1st – next Monday. June 1st will either be a very good day or a very bad day for me.

Day 2 of Ottawa’s Best Weekend of the Year

GC and I headed out around 8:30 in the morning to watch the Marathon. I like to watch from Dow’s Lake, around the 37km mark – they still have about 5km to go. A lot of them are running on sheer willpower by this point.

The winner, while he was in 6th place

The winner, while he was in 6th place

Unlike other years, the elite runners (mostly Kenyans and Ethiopians) weren’t running in a pack. Usually they run together until the last few kilometers, and then they jockey for position and sprint for the finish line. The pack had already broken apart by the time they got to us. It was a little disappointing, because it’s more awesome to see the cloud of long-legged Kenyans approaching and passing in a big thrilling whoosh. It’s not as dramatic when they pass by individually.

marathon090001But I don’t really go to watch the elite runners anyway. I go for the ordinary marathoners. The longer it takes them to run the marathon, the more I like rooting for them. The elite runners only have to run for two hours first thing in the morning and then they’re done for the day. They don’t hold a candle to the underdogs who run for six or seven hours under a hot sun.

GC’s a better cheerleader than me. I clap and smile and take pictures, but he talks to them. He says their name (it’s on their bib) and says stuff like “Looking good,” and “Good work,” and “Awesome job.” (This came in handy towards the end when I was limping towards the car, exhausted from all that clapping, and needed a little extra encouragement.)

Last year I saw the very last runner, and the truck following behind him picking up the pilons. This year we couldn’t stay til the end because of other commitments, but we probably saw three-quarters of the runners.

The Fastest Woman

The Fastest Woman

The Second Fastest Woman

The Second Fastest Woman

marathon090007

A rare case of runner's high

A rare case of runner's high

Just another extraordinary human being

Just another extraordinary human being

We managed to cram a little gardening into this weekend too, because May 24 is, as you know, the official start of gardening season in Ottawa. We bought vegetable seedlings and seeds and took them all over to our community garden plot to plant. Unfortunately there are problems with the water supply there. There is no water. It should be restored by Tuesday, so we brought all our plants and seeds home for the time being. Then we went out for dinner and drew our garden and planned where everything will be planted. This was a bit tricky because some things don’t like to be planted next to certain other things. But we have a plan now, and nobody has to sit next to anybody they don’t like.

Day I of Ottawa’s Best Weekend of the Year

This is traditionally my favourite weekend of the whole year. The Great Glebe Garage Sale and National Capital Race Weekend both happen this weekend! What more could a person ask of a single weekend?

GC and I were up at the crack of dawn today for the massive garage sales over in the Glebe. By the time we got there and found parking, it was 8:00 and the Glebe was already swarming with throngs of bargain hunters. I got my usual treasure-hunting adrenalin rush right off the bat, and GC looked pretty excited too. He’d never been to the GGGS, and he looked like a little kid in a candy store.

There’s something for everybody at the Great Glebe Garage Sale.

Hair Chairs

Hair Chairs

But not everything’s a treasure. I’m pretty sure you can buy toilet paper for less than $3 at your corner store.

$3 roll of toilet paper

$3 roll of toilet paper

Billy Boots

Billy Boots

My first purchase was a pair of billy boots for $2. I’ve been looking for genuine billy boots for awhile now, and I’m not sure they make them anymore. You might know them as gum rubbers, rubber boots or Wellingtons. GC and I are both originally from Montreal, and in Montreal they’re called Billy Boots. GC was deeply envious of my Billy Boot score, but he perked up when he found a Weather Report CD for a dollar.

Here’s my total haul for the day:

Zoom's Haul

Zoom's Haul

Clockwise from the Billy Boots:

  • Billy Boots $2
  • A box destined to become a Swap Box $1
  • Another box destined to become a Swap Box $1
  • The complete boxed set of The Borrowers for Mudmama’s kids $5
  • Eight National Geographics for art (GC bought these, but they ended up in my pile) $2
  • 2 rolls of wallpaper ends for art 25 cents
  • Bookbinding book and 2 packages of bookbinding boards: $3
  • 4 Charger Plates $1
  • A picture for a friend $1
  • An old school atlas 50 cents
  • Wallpaper Magazine 25 cents
  • Stuffed lamb 25 cents (GC bought this)
  • 6 Danish prints $2
  • A secret something, not pictured: $8

GC’s haul included a rain poncho, a CD, a rug and a Mexican pullover.

By noon we were fully weighed down and trudging slowly and my legs were hurting because the drugs were wearing off. So we dragged everything back to the car and went out for a sandwich. Then GC went back to his place to hang out with his brother while I had a three-hour nap. Three hours! (I have to rest up for the marathon tomorrow; marathon-watching is grueling.)