Knitnut.net. Watch my life unravel...
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Posted by zoom! on July 8, 2009, at 6:34 pm |
I really set myself up yesterday, promising to reveal the meaning of life today. You know I was just kidding, right? I mean, I’ve got all kinds of gems of wisdom I can pull out of my ass on a moment’s notice, but the meaning of life is not one of them.
The thing I was getting at, right before I sabotaged myself with that meaning of life thing, was that knowing you’re going to die someday is very different from knowing you’re going to die someday soon.
In those dark days and weeks, I felt things I’d never felt before, and I felt them in ways I’d never imagined. They weren’t even big profound things, they were small, simple, heartfelt things.
In retrospect, I think I was grieving. It’s a strange thing, grieving your own death.
GC and I love to poke around in bookstores. One evening during the dark days, we stopped into Chapters and it was an entirely different experience for me.
I found about a dozen books I wanted to read. There’s nothing unusual about that; it happens every time I go into a bookstore. I talked myself out of buying them, which is also normal. What was different was that normally I would remind myself that I have all kinds of unread books at home, and I should check the library or wait until I see them at a garage sale, and if I need to buy them now, well, they’re almost certainly cheapter at Amazon.ca. But this time it was simply that there was no point buying books to read ‘someday.’ I should just buy the one book I most want to read today. I had reached a place where it only made sense to buy things one at a time. There was no need to stock up or save for a rainy day. Today was the rainy day. It was time to start living.
It’s not such a bad thing, living for today. But it was a startling thing to have my relationship to the future revealed to me in Chapters.
You might remember that I was busy implementing the Getting Things Done system when I got diagnosed. The irony of that is delicious. I stopped Getting Things Done immediately; it was enough to simply get through the days. The only thing that mattered anymore was knowing what really mattered.
There’s something liberating about thinking you’re going to die soon. I mean, it’s kind of a kick in the head, and you’d rather live, but if you’re anything like me, you immediately start looking for the silver lining.
For a brief moment there, during the vast unknown phase of cancer, during the information-gathering process, between the ultrasound and the bone scan, between the biopsy and the MRI, between the diagnosis and the prognosis, between life and death – for a brief moment, I faced my own death with a philosophical shrug.
It’s not so bad, I said, to be dying young. To be getting on with the business of dying rather than the business of living. To be retired, rather than laid off. To be deciding what’s important enough to bother with, and what can be left undone, forever. To write the book or the story or the poem or the blog post that will be the last. To have it all be now, instead of later. To finally live like there’s no tomorrow. It’s not so bad.
And then the test results started trickling in, and it became apparent that life will go on for awhile yet. I’m laid off, not retired. I must get on with the business of living. Of putting things off and Getting Things Done. There’s still the luxury of an endless succession of tomorrows.
If you’ve made it this far, I’ll let you in on what I’ve discovered so far about the meaning of life: The meaning of life is about finding pleasure or joy or meaning in the ordinary. It’s about loving your morning shower. It’s about appreciating who you are and what you have. It’s about not craving more all the time. It’s about putting more emphasis on the present than on the future or the past. It’s about surrounding yourself with the people and things that make you feel good. It’s about helping other people feel good. It’s about having a few things that you love, not a lot of things that you don’t. It’s about quality, not quantity, in all things, including life itself.
But you probably already knew that, right?
Posted by zoom! on July 7, 2009, at 3:01 pm |
Although I’ve always lived with an uncomfortable awareness of my own mortality, my cancer diagnosis brought it careening into the foreground for awhile there. I’m feeling pretty good these days about my prospects for surviving, but in the early weeks I thought I was a goner.
One of my blog readers wrote to tell me that she had survived cancer, and the part I was going through was undoubtedly the most difficult part of the journey. She assured me it would get easier. I clung to that, and she was right. I’m still closer to the beginning than the end of this journey, but it’s already much easier than it was in the early days.
In the beginning, I had to deal with the sheer enormity of having cancer. The word ‘cancer’ carries so much emotional weight, and the diagnosis felt like a death sentence. I don’t know why I have such a visceral reaction to cancer. I don’t have it with heart disease, which is probably just as likely to kill me.
Remember that episode of The Twilight Zone, where the guy suffers through the extraordinary pain of having an earwig eat its way through his brain, and then finally the earwig emerges from the other ear and he thinks he’s survived the ordeal? And then the doctor says “I’m very sorry to have to tell you that the earwig was a pregnant female and she laid eggs all through your brain.”
Finding out I had cancer was like that. Shocking. Horrifying. Surreal. It took me a few days to even say the word without crying.
While I was dealing with the shock I also had to deal with many unknowns as I underwent all the imaging tests that would define what cancer meant in my case. The tests themselves are nothing; it’s the waiting that’s painful. It didn’t help that some of the tests had to be repeated because of suspicious results. As I awaited those crucial test results, my imagination compulsively explored the possibilities, like a tongue exploring the hole where a tooth used to be. I had fantasies about my own funeral.
Meanwhile, every ache and pain felt somehow connected to the cancer. A headache was a brain tumour. A backache meant the cancer had spread to my bones. I visualized it spreading, growing, claiming territory, taking over my body.
At the same time, I was trying to educate myself without freaking myself out even further. It’s amazing how little I actually knew about cancer before I found out I had it. I saw it as a sinister invader, a black menace, an insatiable, malevolent, malignant thing.
Now that I’ve lived with it for awhile and read a fair amount about it, I no longer see cancer as sinister or even as an invader. It’s just part of me. It’s just my cells, with a defect that allows them to keep dividing when they shouldn’t be. It’s just life, trying to achieve immortality. Learning about it was instrumental in coming to terms with it. I think I was just starting to get to that point when I wrote Warts, Wars ad the Language of Cancer. That was twelve days after I received the diagnosis.
I had intended for today’s post to be about locking eyes with my own mortality, and how that changed my life. However, there was a lot more prelude than I expected, and the prelude ate up all the space. Tune in tomorrow, when I will finally reveal the meaning of life. 😉
Posted by zoom! on July 5, 2009, at 2:18 pm |
I’ve always been a little too acutely aware of my own mortality. As a child, I pondered death quite often. Not dying so much, but death itself. The state of being dead. Forever.
It was the permanence of death that weighed so heavily on me.
I tried to bargain with a God I didn’t believe in.
“I could be dead for a million years,” I’d offer, “but not forever.”
God said nothing back.
I knew what death looked like. I saw it once from the back seat of my mother’s car when I was about four or five. My mother was driving. Her friend Peter was in the passenger seat. Debbie and I were in the back seat.
I was looking out the window, thinking about death, when suddenly it appeared. Death was a vast grey void, a bleak landscape empty except for the skeleton of a single dead tree in the background, a whole lot of nothing, a whole lot of forever.
I didn’t say anything. I didn’t tell the others. Shortly after that, Peter committed suicide. I knew he’d been swallowed by this vast grey void and had become part of the nothingness forever. What I couldn’t understand was why he would willingly walk into that gaping maw of eternity. I was mystified that anyone would choose to do the thing that most terrified me.
While eternity was a disturbing concept to me as a very young child, by the time I was nine or ten, I took some comfort from the realization that we each have two eternities: the one before we are born, and the one after we die. I had already been not alive forever, throughout the beginning-less period of time before I was born. And I would be not alive forever once again, throughout the endless period of time after my death. Two eternities.
It made me feel better knowing I’d already lived through one of them, and it wasn’t so bad. (But a little voice in the back of my head kept reminding me that I’d only been through the easy eternity – the one without end would be much, much worse.)
As a teenager, I was convinced that the human species was going to die all together in a nuclear holocaust. The only question was when. Once again I tried to strike a bargain with a God I didn’t believe in.
“Let me make it to 40,” I said, “And I’ll go willingly after that.”
God, in His infinite and ageless wisdom, didn’t dignify my proposal with a response.
It’s funny, though, because I distinctly remember thinking that life after 40 wouldn’t be worth living anyway. Nobody over 40 looked like they were having any fun. They were just stuck in their stupid ruts, doing their stupid stuff, going to their stupid jobs, buying their stupid lottery tickets and going through the motions of life just for the pleasure of complaining about it.
I was a judgemental little shit, now that I think about it.
Anyway. The years tumbled by and in some ways my concept of mortality didn’t change all that much since I was five years old, although, fortunately, my concept of life after 40 did.
Finding out I had cancer changed everything. I locked eyes, briefly, with my own mortality. I’m going to write about it someday soon.
In the meantime, I’m curious to know how the rest of you thought or felt about death when you were children.
Posted by zoom! on July 4, 2009, at 10:33 am |
“It’s a French theme,” XUP explained as she swept into my house and started pulling things from her bag. French herbs. A baguette. A bottle of wine. A beret. Red lipstick.
Then she took over my kitchen, which, in anticipation of her visit, had been stocked with a cornucopia of fresh vegetables. Onions. Zucchini. Garlic. Peas. Carrots. Beans. Spinach. Tomatoes. XUP chopped and diced and sauteed and simmered, and the next thing you know, we had this giant cauldron of delicious vegetable soup. We ate and drank and talked and then it was time for my after-lunch snooze on the couch. XUP cleaned up and did dishes and swept and then we talked some more.
It was a lovely way to spend a convalescent Friday afternoon. Thank you, XUP. You’re a good friend.
I’ve become increasingly reclusive lately, partly because of the lack of mobility brought on by the back problem, but also because, to put it delicately, I stink. I’m not allowed to take a shower or wash my right armpit for 10 days following the breast surgery.
 The Garbage Bag Princess GC made me a lovely green garbage bag dress, which is good for washing my hair while keeping my chest and armpit dry. I look like a wood nymph in it. (Okay, I’m flattering myself here. I’ve seen the pictures. I look like a small, dishevelled, slightly demented Jolly Green Giant.)
At this point – the 9th day after surgery – I could lend my right armpit to a high school science class. They’d probably name it Igor and chase screaming girls around the lab with it.
A few weeks ago I inadvertently scheduled a social event for today, and it’s not rescheduable. I could cancel it on the grounds that I stink, but then I wouldn’t get to see my old friend AndrewZRX and his lovely wife and baby. They’re heading back to Scotland tomorrow. So me and my stinky pit are leaving the house and going out into public today.
If you have a sensitive olfactory system, you might want to avoid the Glebe this afternoon.
Posted by zoom! on July 2, 2009, at 10:44 am |
I’m sick of being sick. It’s not just the cancer. My back problem makes the cancer seem merely inconvenient. The protruding disk is so big it’s almost completely blocking my spinal cavity, and it’s pinching the nerves in there. Bottom line? Severe nerve pain in my left leg, especially when I walk.
So I don’t walk. I lie on my couch, eating painkillers and anti-nausea drugs and anti-inflammatories. I sleep when I can. I read. I think. But mostly I just lie around, waiting.
Waiting for what? Well. This is the crazy part. I’m waiting to either get on a waiting list or to become permanently disabled as a result of waiting too long.
My doctor’s been trying to get me an appointment with either an orthopedic surgeon or a neurosurgeon, but she’s being told that here in Ottawa, orthopedic surgeons have two-year waiting lists. I’m not even on a waiting list yet.
My doctor says my situation is urgent but it’s not yet an emergency. I will be escalated to emergency status when I lose bowel or bladder control, or when I lose the ability to voluntarily lift my toes toward my knee (foot drop, it’s called, and it’s not as innocuous as it sounds).
It’s insane.
I’m going to end up addicted to narcotics because of this. The painkillers don’t eliminate the pain, they just dull it as long as I’m lying down. Walking is still excruciating. The painkillers are addictive, so I have to choose between addiction and constant severe pain. What kind of choice is that?
I’m probably going to lose my house. My severance package will not stretch to cover two years of unemployment, and I won’t qualify for welfare or disability as long as I have a house. I can work, but I can’t commute to and from a job. (I’m looking for work I can do from my couch.)
And then there’s the rest of my body. It’s just not healthy to spend two years lying down. My muscles are atrophying. I was never a triathlete or anything like that, but I’m not cut out for this slug-like existence either. Walking has been my primary form of transportation and exercise all my life. I do my best thinking when I’m walking. I love walking. I need to walk!
I also need to do something about this situation. I can’t just lie here for years, waiting for the health care system to get around to me. I don’t care if there’s a shortage of orthopedic surgeons and the population is aging and operating room time is limited. I need surgery. This is Canada. This is ridiculous.
I don’t believe in a two-tiered health care system, and I don’t believe in jumping the queue. It breaks my Canadian heart to tell you I’m willing to set aside my own values in order to get what I need right now.
If you have any suggestions about what I can do to expedite access to an orthopedic surgeon or a neurosurgeon, please let me know. Who should I be talking to? Politicians? Doctors? Health care administrators?
Posted by zoom! on July 1, 2009, at 3:34 pm |
Last night we went over to the Museum of Civilization to be part of the studio audience for two tapings of The Vinyl Cafe with Stuart McLean. Mostly we wanted to see our good friend, local blogger Hella Stella, who was the special musical guest.
From what we could tell, most of the audience was there to see Hella Stella. The local blogging community was out in full force. The people beside us were there for Hella Stella too, and they weren’t even bloggers. It was a friendly crowd too, which is what you’d expect of a bunch of Hella Stella fans. And she was wonderful, singing some old favourites from her last album, and a new favourite from her next album.
Stuart McLean wasn’t what I was expecting. His voice, of course, was exactly what I was expecting since I’ve heard it on CBC Radio a thousand times. But he is far more physical and animated than I imagined, with full participation from his hands and arms and knees and hips and head. He’s not just reading those Dave Morley stories, he’s wriggling around inside them. He’s like a literary Joe Cocker.
I’ve heard Hawksley Workman’s name a whole lot of times, but I’d never actually seen him play before last night. He was Stuart McLean’s other special musical guest. He was excellent. The acoustics in that theater lent themselves beautifully to vocal magic tricks, and Hawksley Workman does some really trippy stuff with his voice. I bought a CD.
Because of my ongoing back problem, which is getting worse by the week, I haven’t been able to walk for more than a minute lately without also crying and swearing. Mostly I just lie on the couch, eating painkillers and Gravol. Yesterday was a worse-than-average day, from a pain perspective, so I was a little worried about how I was going to manage to get to the show and back.
GC had the logistics all figured out. He dropped me off on a bench outside the Museum, and then parked the car in Handicapped Parking. (As of last week, I’m an officially handicapped person for car-parking purposes.) Then he met me at the bench, walked me inside, and left me on the first bench inside the museum. He returned a short time later with a wheelchair.
It all worked out pretty well. Except that I felt funny about using a wheelchair. I felt like a fraud or something. Same thing with the handicapped parking permit. Rationally, I know I am legitimately entitled to it and I need it and I’m not abusing it…but I’m having trouble reconciling my concept of myself with that handicapped symbol.
Posted by zoom! on June 30, 2009, at 1:14 pm |
Posted by zoom! on June 28, 2009, at 4:51 pm |
My Mom dropped in yesterday and brought me a present – it’s a Happy Cat Chair.  Happy Cat Chair
She picks up these chairs (and tables, dressers and cradles) at garage sales, takes them home, cleans them up and paints them. Each piece is unique.
I love mine!
 
 Happy Cat on Happy Cat Chair
Posted by zoom! on June 27, 2009, at 5:47 pm |
I liked having my surgery at the Queensway-Carleton Hospital’s Day Surgery Unit. The staff there, for the most part, seemed friendly and competent. It’s important, when you’re in such a vulnerable position, to feel you’re in good hands.
Here are just a few of the people who made an impression.
Mary
The first person you meet when you’re directed to the Day Surgery Unit is Mary. Mary’s such a character, she’s almost a caricature of herself. She’s a displaced Maritimer, but she’s thoroughly Irish, starting with her standard greeting: “Top o’ the mornin’ to ya.” She’s bustling and efficient and outrageously cheerful and good-humoured. Everything about her smiles: her eyes, her mouth, her voice, her words. You don’t get to spend enough time with Mary. She just processes your paperwork and delivers you into the hands of either an orderly or a volunteer, who escorts you to the Day Surgery ward. But during your brief time with her, she’ll call you ‘love’ and show you pictures of her cat, Pickles, or she’ll tell you not to fret because you’re in good hands and everybody here loves the patients, or she’ll say something like “Oh, I see your surgeon is Dr. Proudlove. He’s an excellent pastry chef, did ya know that? Yes he is, and a very fine surgeon too, I’m told.”
Lisa
I mentioned Lisa before. She’s the nuclear medicine technologist who took the time to call booking and make me an MRI appointment when she found out they still hadn’t scheduled one with me. It might not sound like a big deal, but when you’re going through cancer diagnostics and imaging tests, it feels like every hour counts and you’re grateful to every person who moves an obstacle out of your way.
At 8:00 on Wednesday morning, Lisa suddenly appeared at the foot of my bed, smiling warmly like an old friend and saying “Hey, remember me? I met you the day of your bone scan.” We caught up a bit while she and GC rolled me and my bed right back to that same room where I had the bone scan. Then she took the time to explain the procedure she was about to perform – she was going to inject a radioactive isotope into my breast, which would enable my surgeon to distinguish my sentinel lymph node from my other lymph nodes. This way, the surgeon could remove only a couple of nodes which would be tested for cancer on the spot, instead of removing all of them. She told me apologetically that it was going to burn and she was right. (GC commented afterwards on how impressively sharp my fingernails were.)
I saw Lisa again later in the day as I was leaving the hospital in a wheelchair, and she came down to my eye level to talk to me. Nice touch, I like that. (Extra added bonus: I peed green for two days because of the isotope.)
Angel
She’s my surgeon. There was a big full-colour picture of her last week in the flyers that were delivered with the Saturday Citizen – she’s the poster doctor for the hospital’s current campaign. It said “Dr. Angel Arnaout is changing the face of cancer care.”
I think she’s got all the qualities you could want in a surgeon. She’s energetic, focused and driven, and probably a workaholic. She exudes self-confidence, and she maximizes every moment. There’s a precision to her: she chooses her words precisely, she doesn’t waste time, she doesn’t beat around the bush. She gets right to the heart of the matter. But she’s not cold. When the situation requires it, she will sit by your bedside, look you in the eye, and tell you gently but firmly that she’s going to fix things. And then she does. She knows how to make things happen.
In addition to all that, she’s quite exotic looking and stylish, and she shows up at the hospital for surgery at 6:30 in the morning dressed to kill, flawlessly made up and brilliantly accessorized. (And there I was, feeling like I’d accomplished a lot just by showing up at this ungodly hour and lying there in a hospital gown and shower cap.)
(Hmmm. In retrospect, maybe ‘dressed to kill’ isn’t the most appropriate term to use to describe a surgeon’s appearance. But you know what I mean, right?)
Posted by zoom! on June 25, 2009, at 2:39 pm |
I’m home, happy, healthy, hot, hungry and high. They gave me good drugs. For awhile there I was completely pain free, and it felt heavenly. I slept too, for the first time in days. Blissful.
The tumour is gone! The doctor thinks she got it all! And the lymph node biospy was crystal clear! I’m alive! I’m going to live happily ever after!
I’m going to start with a nap.
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